Part 2 of Laney’s life and Crohn’s Disease. The story of a true champion. The story of Laney! Laney, the Crohn’s Warrior.
Laney is presently bleeding inside. She bleeds through damaged areas in her large intestine. She is not in remission now, even though she takes Azothiaprine, 100miligrams per day. She is fighting… fighting pain, fatigue, nausea, depression, anxiety, herself…at 7 years old! No 7-year-old should have to be subjected to this but Laney doesn’t think this way. She is positive and optimistic on the outside but I know she is terrified on the inside! She is just TOO TOUGH to let anyone smell the fear, the pain, deep inside her tiny, damaged tummy.
Azothiaprine DESTROYS Laney’s immune system. Why, you may ask does she take the drug then? It is the lesser of 2 evils at this time. Azothiaprine puts her immune system in a “head-lock”, if you will, preventing her tummy from being attacked, in specific, her gastrointestinal system.
The problem is, it is a very TOXIC chemical, continually damaging her small master organ, her liver! Presently, Laney has lab drawn weekly to make sure her liver is tolerating the DRUG…the FDA approved Killer Drug. If this drug continues to cause problems, then Laney will be faced with intravenous chemotherapy, which increases her chances of various cancers to 11%! She is only 7…
Crohn’s is the WORST auto-immune disease affecting the entire GI tract from the mouth to the anus. Crohn’s Disease causes many severe problems in the GI tract and can attack anywhere along the GI tract.
FOR more Crohn’s Information click HERE.
Despite Laney losing 3 pounds in the last two weeks, which took her 6 months to gain, she recently earned her Brown Belt in Traditional #TaeKwonDo
This is one “Belt” below Black Belt!
She tested in front of the Grand Master, Sun-Yi and performed as if she were a “healthy” 7-year-old…but she is not. Her large intestine, swollen, oozing mucus and scarlet-red, life-giving blood, her large intestine was causing her SEVERE pain. Severe pain, hidden, while she methodically and gracefully worked through her perfected TaeKwonDo forms, alongside her big brother, Landon!
- Landon snaps a quick punch in the background, while Laney strikes the enemy in the foreground! Landon and Laney are “thick as thieves” they are! Landon is the same rank in TaeKwonDo as the mighty, little Laney. The difference is Landon is a couple of years older than Laney and he is a very healthy boy!
Laney completely hid the pain during Taekwondo Testing. The constant aching and stabbing sensations in the lower abdomen was a perpetual reminder she can’t ever escape from Crohn’s Disease.
The bloated belly feels full and urgent, constantly, but you wouldn’t know if you looked at Laney performing her “Forms” perfectly. Sparring like she has the spirit of a Lioness in her…I think she does!
- “Spirit of a Lioness” by Simbamarasa, reminds me of Laney’s inner spirit…Laney is a Young Lioness! Brave, Powerful, Intelligent and a FIGHTER…A WARRIOR!
Laney is NOT responding well, at all, to the drug Azothiaprine. She has elevations in her liver enzymes, 5 times the normal level, which indicates moderate to severe liver damage. She was reduced on her Azothiaprine dosage, and 1 month later, her Crohn’s is out of remission…BACK with a vengeance, attacking our perfect, kind, beautiful, and intelligent “Laney-Bug”!
- Laney and her big-brother Landon, holding their Brown Belt Certifications. She smiles and on the inside, she is screaming! Nobody understands her pain and fatigue truly, but her. She hides this gargantuan part of her life, to protect her family, her mother and father, from the worry!
Information on alternative, natural medication to treat Crohn’s Disease right here! Click Here
I am Laney’s father. I am also a Registered Nurse, with years of higher education. Proudly, I am also a father of 4 total kids, and a grandfather of 1, beautiful, baby girl!
I suffer from insulin dependent diabetes and diabetic neuropathy in my feet, fingers, and legs mostly. Pain medication prescribed by my doc, does not work and has awful side effects. It is the only choice I have living in Kansas. I am a law abiding citizen. I don’t break the law! So, I have to continue using the BIG Pharmacy medications, endorsed by our far right wing republicans in Kansas!
Kansas is ultra-conservative. So conservative that the state is voting on bills that would legalize discrimination against the LGBT community and… Kansas is voting on a bill to SPANK kids in school until their bottoms are red right now!
- Kansas has put the Cannabis Compassion and Care Act in the trash can for the past several years. The chronically ill HAVE to, and Need to, get this bill passed NOW! HB2198 and SB9! The above picture gives the potential medical marijuana patients, little hope for a more empathetic and intelligent, dare I say, scientific, Kansas House and Kansas Senate. The Kansas Government is led by Christian Extremest, Governor Sam Brownback!
The bill, HB 2198 and SB9, were introduced several years ago, the bill is the Cannabis Compassion and Care Act. If passed, patients such as Laney, could have LEGAL ACCESS to specific strains of medical marijuana.
The strains have very little THC, the psychoactive component, but high amounts of cannabinoids or CBDs. The CBDs are responsible for halting Crohn’s disease and inducing remission… complete remission!
Dr. Sanjay Gupta Explains best in this incredible documentary on the benefits, the miracle of natural plant therapy…Marijuana! The good Doctor explains why he reversed his opinion on Medical Marijuana!