Medical marijuana option leads KC family to move to Colorado.
Families from 43 states have moved to Colorado to seek medical cannabis treatment for their loved ones… My family will be making the move soon as well for our 7-year-old daughter with Severe Crohn’s Disease.
Sydni Yunek suffers from rare form of epilepsy
Colorado’s recent changes to its marijuana laws have highlighted a unique form of healing.
Hundreds of kids with epileptic seizures like Sydni Yunek have moved with their families to Colorado to take advantage of a special cannabis oil.
“To stay at task and to figure out how to get these things into the tongs, just that right there would send her into a cluster of seizures,” said Holli Brown, Sydni’s mother.
She said for the last five and a half years, her daughter has been unable to focus on anything for more than five minutes. Sydni has a rare form of epilepsy called Doose syndrome and has undergone nearly a dozen failed treatments.
“No neurologist anywhere we’ve been had an answer how to fix her,” Brown said.
“She required total assistance for pretty much everything. She wasn’t participating in any of her self care,” said occupational therapist Maureen Gaitor.
Since Brown and Sydni moved to Colorado Springs from Kansas City last year, days that had been restricted to the couch are now replaced by a much stronger mother-daughter bond.
“I don’t know if the people in Kansas City will appreciate this as the ones who have watched her for the last five years,” Brown said.
More than 100 children like Sydni have moved to Colorado from 43 states after hearing about a new strain of cannabis oil called Charlotte’s Web. It’s grown in the mountains by a nonprofit called Realm of Caring – not to get children high, but in part to control their seizures.
Sydni’s not entirely away from difficulty. She had multiple seizures just as KMBC 9 came to her apartment to chronicle her story. Brown said it was one of the toughest days in the past few months since Sydni has been on the oil.
“It’s not on camera tonight because she’s having a rough day, but I’ve seen incredible things,” she said.
But an hour after a dose of cannabis, Sydni was able to go through a previously scheduled occupational therapy session with Gaitor.
“She would not have had a comeback like this prior to being on the oil,” Brown said.
Sydni’s seizures that night were reduced from every few minutes to zero.
“Would I just let her seize for the rest of her life over this old way of thinking,” Brown said. “Would I just say, ‘Nope. It’s not possible that this is helpful. Sorry, Sydni.”
“All of the other medications weren’t working. She was as medicated as she could be and all she could do was sit on the couch,” said Gaitor.
The National Epilepsy Foundation has said there is currently insufficient scientific data in humans to back up the claims of relief, but it supports research on cannabis and other marijuana options.
Brown said it’s unfair the laws of Missouri and Kansas forced children like Sydni to move to Colorado.
My very own daughter Laney, is on the waiting list at the very same clinic to see physicians that specialize in this amazing therapy! There are people from all over the world on this waiting list. There is not enough medicine to go around! Because it works. Recreational users do not use this strain because it does not get them “high”.
Marijuana has always been big business, and with legalization taking effect across America, it’s hard to deny the potential for a financial boom in the economy. This new reality has conservatives like Michael Correia jumping in, ready to be the face and driving force behind equality for the emerging marijuana business sector.
Lobbyist for Cannabis Business
Although, Correia spent the last couple of years as a GOP staffer and lobbyist for the American Legislative Exchange Council, working on issues such as gun restriction, he is now refocusing his agenda as an advocate for the National Cannabis Industry Association—a national trade association that seeks equal treatment for marijuana business under federal law.
Michael Correia is a former GOP staffer | Image courtesy – cannabiscamera.com
You are not likely to find Correia smoking marijuana, himself, but he does have this to say about representing marijuana commerce: “These are legitimate businesses, producing revenue, creating jobs. I want to be the face of it. I want to be what congress sees.”
He’s eager to do his part to assure that the economic potential of the industry does not continue to be oppressed by unfair federal regulation on tax, charitable donations, and revenue processing.
Correia believes that this issue is the perfect way to fight for the principles he’s always stood for—limited government, equality, and freedom; and he’s not alone. His support of the cause has lead to collaboration from Grover Norquist (anti-tax activist and founder of Americans for Tax Reform). Together they’re lobbing for the right of marijuana businesses to deduct expenses from their taxes.
A New Approach
Instead of focusing on the war on drugs in general (a trend Correia has noticed among traditional supporters), he believes that focus on the concrete legal issues and federal equality violations will make the difference in acquiring support for the movement, and ultimately creating change.
Medical cannabis (or medical marijuana) refers to the use of cannabis and its constituent, cannabinoids, such as tetrahydrocannabinol (THC) and cannabidiol (CBD), as medical therapy to treat disease or alleviate symptoms. The Cannabis plant has a history of medicinal use dating back thousands of years across many cultures. Cannabis use has been dated back 10,000 years in human history. This isn’t opinion, this is fact. Scientifically proven with Carbon-14 dating. Even if it is accuracy is questioned, give or take a thousand years, it has been used for thousands of years! The American Government has made this beneficial plant an evil, addictive, gateway drug, while endorsing and receiving taxes and other money from “legal” drugs that kill millions every year such as alcohol and tobacco. In fact, a recent survey of over a thousand Americans listed Alcohol, Tobacco, Sugar and Marijuana and wanted the polled Americans to rate the danger level of each substance. Tobacco was first, Alcohol 2nd, Sugar 3rd, and Cannabis 4th, with only 8% finding it dangerous.
Cannabis has been used to reduce nausea and vomiting in chemotherapy and people with AIDS, and to treat pain and muscle spasticity; its use for other medical applications has been studied, but there is insufficient data for conclusions about safety and efficacy. Short-term use increases minor adverse effects, but does not appear to increase major adverse effects. Long-term effects of cannabis are not clear, and there are safety concerns including memory and cognition problems, risk for dependence and the risk of children taking it by accident.
These adverse effects, partly, are part of the propaganda that has been spread about the plant since the 1930s. It has thousands of double-blind placebo tests (scientific standard in studies), but even with the mountain of science, many state governments and our Federal Government refuse to allow compassionate use of Cannabis for our chronically ill. Instead, they are forced into poly pharmacy. I am a registered nurse and have taken care of people on over 40 different medications they take several times per day. Most of them are dead now.
Cannabis is healing. Human Beings have an endocannabinoid system. Cannabis is specially effective in bowel disorders, such as Crohn’s disease, which my 7-year-old, beautiful daughter suffers from. Click on the link to see her story. See Laney’s story here.
Medical cannabis can be administered using a variety of methods, including vaporizing or smoking dried buds, eating extracts, and taking capsules. The old thinking on the delivery method of the drug is dated and very stereotypical of a marijuana user. There are tinctures and have been for 100s of years. People DO NOT HAVE TO SMOKE CANNABIS to get the same valuable and medicinal effects.
Synthetic cannabinoids are available as prescription drugs in some countries; examples include: dronabinol (available in the United States (US) and Canada) andnabilone (available in Canada, Mexico, the United Kingdom (UK), and the US). Recreational use of cannabis is illegal in most parts of the world, but the medical use of cannabis is legal in certain countries, including Austria, Canada, Finland, Germany, Israel, Italy, the Netherlands, Portugal and Spain. In the US, federal law outlaws all cannabis use, while 20 states and the District of Columbia have decided they are no longer willing to prosecute individuals merely for the possession or sale of marijuana, as long as the individuals are in compliance with the state’s marijuana sale regulations. However, an appeals court ruled in January 2014 that a 2007 Ninth Circuit ruling remains binding in relation to the ongoing illegality, in federal legislative terms, of Californian cannabis dispensaries, reaffirming the impact of the federal Controlled Substances Act
Please sign the petition for all those that don’t have a voice. I am an activist, Marine, father of 4, grandfather, devoted husband and a registered nurse. I am also an insulin dependent diabetic with neuropathy. It’s time to end this insanity! I have to take pills that elevate my liver enzymes, cause muscle weakness and much more. Cannabis has been proven to treat painful neuropathy and glucose transport in diabetics. PLEASE HELP US! ALL AMERICANS SHOULD HAVE SAFE ACCESS TO MEDICAL CANNABIS!
by Emery Myers “AKA” Laney’s Dad
Dr. William Courtney Calls Child “A Miracle Baby”
Dr. William Courtney
Medical marijuana is gaining acceptance, but could it even help kids? Dr. William Courtney has seen it happen, and on Friday, told HuffPost Live host Alyona Minkovski about it. Saying he was “quite a skeptic 5 or 6 years ago”, Dr. Courtney continued that “my youngest patient is 8 months old, and had a very massive centrally
original article at: http://www.cureyourowncancer.org/dr-william-courtney-calls-child-a-miracle-baby.html
Marijuana Helps Crohn’s Disease, Ulcerative Colitis
Crohn’s disease and ulcerative colitis, the two main types of inflammatory bowel disease (IBD), are a challenge to treat. Among the potential treatment options is marijuana, and several recent studies indicate that this unconventional option offers some significant benefits.
How we treat inflammatory bowel disease
The current treatment options for the more than 1.5 million Americans and millions more who suffer with inflammatory bowel disease include dietary measures (e.g., olive oil extract,vitamin D, probiotics) and a variety of drugs. These treatments attempt to alleviate the diarrhea, rectal bleeding, fever, weight loss and abdominal pain and cramps associated with the disease.
The more common treatments for IBD include anti-inflammatory drugs, such as sulfasalazine, corticosteroids (which have significant side effects and are only suitable for short-term use), mesalamine (e.g., Apriso, Dipentum, Lialda), immune system suppressors (e.g., azathioprine, cyclosporine, infliximab, adalimumab, certolizumab, methotrexate), which can have significant side effects, and antibiotics, which are of questionable benefit. Beyond these drugs are others that can address specific symptoms such as diarrhea, constipation, or pain, or address nutritional deficiencies (e.g., iron, calcium, vitamin B12). Surgery is a last resort.
Inflammatory bowel disease can be life-threatening and thus deserves focused attention. Ulcerative colitis typically affects only the large intestine (colon) and rectum and usually develops gradually over time. Crohn’s disease can occur anywhere along the intestinal tract and can infiltrate the tissues.
Studies of marijuana and IBD
A review of investigations into the use of cannabis for inflammatory bowel disease reveals that its use “in the clinical therapy has been strongly limited by their psychotropic effects.” The authors of this recent Italian study, however, point out that cannabidiol (a non-psychoactive and healthful ingredient in marijuana), “is a very promising compound” because it does not have any psychotropic effects, and that it is a “potential candidate for the development of a new class of anti-IBD drugs.”
A 2012 study published in Digestion noted that people who had had IBD for a long time responded favorably to marijuana, experiencing an increase in appetite, weight gain, better social functioning, improved ability to work, and an improvement in depression and pain after three months of treatment with inhaled cannabis. Earlier studies have also indicated positive effects.
For example, an Israeli study was the first to show that use of marijuana in people with Crohn’s disease could provide a positive result. Twenty-one of the 30 patients in the study experienced significantly improvement after using marijuana, and the need for drugs was significantly reduced as well.
In yet another study, Canadian researchers evaluated 100 people with ulcerative colitis and 191 with Crohn’s disease and their use of marijuana. The investigators found a significant level of marijuana use among people with ulcerative colitis and Crohn’s disease (about 50% in each group). People who had a history of surgery for IBD were more likely to use marijuana (60%) than were those who had not undergone surgery (32%).
The bottom line appears to be that use of marijuana among people who have inflammatory bowel disease may be beneficial. If you have ulcerative colitis or Crohn’s disease, you should ask your healthcare provider or another healthcare professional about the possibility of using marijuana for symptom relief.
Esposito G et al. Cannabidiol in inflammatory bowel disease: a brief overview. Phytotherapy Research 2012 July; doi:10.1002/ptr.4781
Lahat A et al. Impact of cannabis treatment on the quality of life, weight and clinical disease activity in inflammatory bowel disease patients: a pilot prospective study. Digestion 2012; 85(1): 1-8
Lal S et al. Cannabis use amongst patients with inflammatory bowel disease. European Journal of Gastroenterology and Hepatology 2011 Oct; 23(10): 891-96
Naftali T et al. Treatment of Crohn’s disease with cannabis: an observational study. Israel Medical Association Journal 2011 Aug; 1(8): 455-58
Original article at: http://www.emaxhealth.com/1275/marijuana-helps-crohns-disease-ulcerative-colitis
Originally posted on WWW.DarwinsRightLeftWing.com:
Please, if you are a parent, please sign this petition. Marijuana is a diverse plant with MANY beneficial properties. My daughter is taking a dangerous chemo drug for her Crohn’s Disease. She is only 7. It will leave her sterile and further injure her liver. Please help her. Please help ALL Kansans with Chronic Illness and Pain without voices. Please sign this all important, historic petition. Stand and scream! Make your voices so loud that the House and Senate WILL HAVE TO LISTEN TO US!
Part 2 of her story is here: Laney’s Story of Living with Crohn’s Disease.
Marijuana strains are rich in THC, or the “psychoactive component”. Some Marijuana strains are high the CBDs, the chemicals without…
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We have long associated medical marijuana with benefiting sufferers of illnesses such as HIV/AIDS, multiple sclerosis and cancer. Now a new study concludes the plant can help diabetes patients, too.
Research published in the American Journal of Medicine has linked regular marijuana use to lower insulin levels, smaller waistlines and higher “good” cholesterol levels. The find has inspired debate about whether medical cannabis could be used as an effective diabetes treatment.
“Epidemiological studies have found lower prevalence rates of obesity and diabetes mellitus in marijuana users compared with people who have never used marijuana, suggesting a relationship between cannabinoids and peripheral metabolic processes,” the study’s authors wrote.
Researchers Elizabeth Penner, Hannah Buettner and Dr. Murray A. Mittelman, MD studied 4,657 adult men and women from the National Health and Nutrition Examinations Survey (NHANES) between 2005 and 2010. Those who currently smoked marijuana exhibited lower levels of fasting insulin and lower levels of insulin resistance than those who never or occasionally smoked. Marijuana smokers also had smaller waist circumferences and higher HDL cholesterol levels than those who never or sometimes smoked marijuana.
Dr. Mittelman wrote that the research “is the first study to investigate the relationship between marijuana use and fasting insulin, glucose and insulin resistance.”
Doctors and Patients React
Dr. Joseph S. Alpert, MD, editor-in-chief of the American Journal of Medicine and Professor of Medicine at the University of Arizona, wanted to know if it is “possible that THC (tetrahydrocannabinol, the principal psychoactive constituent of the cannabis plant) will be commonly prescribed in the future for patients with diabetes or metabolic syndrome alongside anti-diabetic oral agents or insulin for improved management of this chronic illness?”
In an attempt to answer this question, The Medical Marijuana Review spoke with doctors and diabetes patients to learn more about medical marijuana’s potential as a treatment for a disease which affects nearly 19 million Americans, with nearly 2 million new cases reported each year, according to 2011 figures from the American Diabetes Association.
“A minority specifically say that cannabis reduces their blood sugar. Most are using it to treat ancillary symptoms or unrelated symptoms,” says Dr. William Eidelman, MD, a Los Angeles–based natural medicine advocate. Eidelman also says medical marijuana is especially helpful with appetite stimulation.
“Sometimes if [patients] have taken insulin, but have no appetite, cannabis enables them to eat the food they must have to avoid a crisis,” he said, adding that the plant is also “helpful in treating the pain of peripheral neuropathy,” the pain or numbness caused by nerve damage.
That’s exactly why David Larkin smokes medical marijuana. The 54-year-old retail manager from Portland, Oregon, who has had type 1 diabetes for a decade, told The Medical Marijuana Review that cannabis is an “indispensable” part of his treatment regimen. Larkin described symptoms that include “burning pain” in his lower extremities, as well as nausea and loss of appetite. He said medical marijuana helps alleviate nearly all of his symptoms.
Some doctors are skeptical of medical marijuana’s usefulness in treating diabetes. Dr. Domenico Accili, Professor of Medicine at Columbia University and Director of the Columbia University Diabetes and Endocrinology Research Centerin New York City, told The Medical Marijuana Review that “there is no solid, case-controlled, mechanism-based evidence to indicate that cannabis use would be beneficial for diabetes treatment.” The American Diabetes Association also took exception to the new study’s findings, noting that the research was an observational study rather than a controlled experiment.
Dr. Accili, who just won the 2013 Steiner Award for outstanding achievement in diabetes, added that medical marijuana faces additional obstacles “given the complexity of approving new treatments for diabetes.”
A Canadian diabetes patient also was unwilling to embrace medical marijuana as a treatment for her illness. Louise Gullion, a 62-year-old Grimshaw, Alberta resident with type 2 diabetes, said in an interview that she suffers from “tummy troubles” – namely, lack of appetite and nausea – as a result of her insulin regimen. Grimshaw takes NovoRapid before each meal, Levemir in the morning and evening and Gliclazide twice a day. She’s gained about 35 pounds on insulin.
“I’ve heard that medical marijuana helps with treatment, but I don’t smoke and am not about to start at my age,” Gullion said.
Researchers stressed that more studies are needed to determine the efficacy of cannabis in treating diabetes.
“We desperately need a great deal more basic and clinical research into the short-and long-term effects of marijuana in a variety of clinical settings, such as cancer, diabetes and frailty of the elderly,” Dr. Alpert wrote in the American Journal of Medicine. “I would like to call on the NIH (National Institutes of Health) and the DEA (Drug Enforcement Administration) to collaborate in developing policies to implement solid scientific investigations that would lead to information assisting physicians in the proper use and prescription of THC in its synthetic or herbal form.”
But with the U.S. government classifying cannabis as a schedule I drug – meaning it has “no currently accepted medical use” – conducting more diabetes–marijuana research remains a tricky proposition.
Flickr photo courtesy Mike Young
Part 2 of Laney’s life and Crohn’s Disease. The story of a true champion. The story of Laney! Laney, the Crohn’s Warrior.
Laney is presently bleeding inside. She bleeds through damaged areas in her large intestine. She is not in remission now, even though she takes Azothiaprine, 100miligrams per day. She is fighting… fighting pain, fatigue, nausea, depression, anxiety, herself…at 7 years old! No 7-year-old should have to be subjected to this but Laney doesn’t think this way. She is positive and optimistic on the outside but I know she is terrified on the inside! She is just TOO TOUGH to let anyone smell the fear, the pain, deep inside her tiny, damaged tummy.
Azothiaprine DESTROYS Laney’s immune system. Why, you may ask does she take the drug then? It is the lesser of 2 evils at this time. Azothiaprine puts her immune system in a “head-lock”, if you will, preventing her tummy from being attacked, in specific, her gastrointestinal system.
The problem is, it is a very TOXIC chemical, continually damaging her small master organ, her liver! Presently, Laney has lab drawn weekly to make sure her liver is tolerating the DRUG…the FDA approved Killer Drug. If this drug continues to cause problems, then Laney will be faced with intravenous chemotherapy, which increases her chances of various cancers to 11%! She is only 7…
Crohn’s is the WORST auto-immune disease affecting the entire GI tract from the mouth to the anus. Crohn’s Disease causes many severe problems in the GI tract and can attack anywhere along the GI tract.
FOR more Crohn’s Information click HERE.
Despite Laney losing 3 pounds in the last two weeks, which took her 6 months to gain, she recently earned her Brown Belt in Traditional #TaeKwonDo
This is one “Belt” below Black Belt!
She tested in front of the Grand Master, Sun-Yi and performed as if she were a “healthy” 7-year-old…but she is not. Her large intestine, swollen, oozing mucus and scarlet-red, life-giving blood, her large intestine was causing her SEVERE pain. Severe pain, hidden, while she methodically and gracefully worked through her perfected TaeKwonDo forms, alongside her big brother, Landon!
- Landon snaps a quick punch in the background, while Laney strikes the enemy in the foreground! Landon and Laney are “thick as thieves” they are! Landon is the same rank in TaeKwonDo as the mighty, little Laney. The difference is Landon is a couple of years older than Laney and he is a very healthy boy!
Laney completely hid the pain during Taekwondo Testing. The constant aching and stabbing sensations in the lower abdomen was a perpetual reminder she can’t ever escape from Crohn’s Disease.
The bloated belly feels full and urgent, constantly, but you wouldn’t know if you looked at Laney performing her “Forms” perfectly. Sparring like she has the spirit of a Lioness in her…I think she does!
- “Spirit of a Lioness” by Simbamarasa, reminds me of Laney’s inner spirit…Laney is a Young Lioness! Brave, Powerful, Intelligent and a FIGHTER…A WARRIOR!
Laney is NOT responding well, at all, to the drug Azothiaprine. She has elevations in her liver enzymes, 5 times the normal level, which indicates moderate to severe liver damage. She was reduced on her Azothiaprine dosage, and 1 month later, her Crohn’s is out of remission…BACK with a vengeance, attacking our perfect, kind, beautiful, and intelligent “Laney-Bug”!
- Laney and her big-brother Landon, holding their Brown Belt Certifications. She smiles and on the inside, she is screaming! Nobody understands her pain and fatigue truly, but her. She hides this gargantuan part of her life, to protect her family, her mother and father, from the worry!
Information on alternative, natural medication to treat Crohn’s Disease right here! Click Here
I am Laney’s father. I am also a Registered Nurse, with years of higher education. Proudly, I am also a father of 4 total kids, and a grandfather of 1, beautiful, baby girl!
I suffer from insulin dependent diabetes and diabetic neuropathy in my feet, fingers, and legs mostly. Pain medication prescribed by my doc, does not work and has awful side effects. It is the only choice I have living in Kansas. I am a law abiding citizen. I don’t break the law! So, I have to continue using the BIG Pharmacy medications, endorsed by our far right wing republicans in Kansas!
Kansas is ultra-conservative. So conservative that the state is voting on bills that would legalize discrimination against the LGBT community and… Kansas is voting on a bill to SPANK kids in school until their bottoms are red right now!
- Kansas has put the Cannabis Compassion and Care Act in the trash can for the past several years. The chronically ill HAVE to, and Need to, get this bill passed NOW! HB2198 and SB9! The above picture gives the potential medical marijuana patients, little hope for a more empathetic and intelligent, dare I say, scientific, Kansas House and Kansas Senate. The Kansas Government is led by Christian Extremest, Governor Sam Brownback!
The bill, HB 2198 and SB9, were introduced several years ago, the bill is the Cannabis Compassion and Care Act. If passed, patients such as Laney, could have LEGAL ACCESS to specific strains of medical marijuana.
The strains have very little THC, the psychoactive component, but high amounts of cannabinoids or CBDs. The CBDs are responsible for halting Crohn’s disease and inducing remission… complete remission!
Dr. Sanjay Gupta Explains best in this incredible documentary on the benefits, the miracle of natural plant therapy…Marijuana! The good Doctor explains why he reversed his opinion on Medical Marijuana!
Please help. Please stand up and fight with this Kansas Dad! This disabled Marine Veteran of Desert Storm, This Kansas father and grandfather… Please, for all of us. This isn’t about you and I…it’s about them…the silent majority that either can’t speak out, or are too afraid.
The disabled, the care givers, the military, anyone that could benefit from treatment, treatment with marijuana! 20 other states have enacted medical marijuana laws and 2 states have legalized it completely!
Kansas Government either won’t give Kansans freedom and choice, or will just keep doing the status-quo, the “same-ol-same-ol-good-ol-boy-” political routine, which the Kansas House and Senate have practiced for the last 40 years, since President Nixon!!!
Please sign this petition. Don’t do it for you…Sign it for those Kansans that need the choice to use a safe, effective plant instead of deadly narcotics, pushed by Big Pharmacy and the FDA!
Click HERE to sign the petition and FORCE the terribly antiquated and hyper-conservative government to read this BILL HB2198 and SB9! The voiceless need your help and compassion. Even if you don’t agree, share this so everyone can have a choice, for themselves, for Laney, for FREEDOM!
written by Emery Myers, proudly known as “Laney’s Dad”
Kansas government has killed HB2198 for 3 years now…will 2014 be the year Kansas citizens actually get a voice?
Please click the link below for the most current news video on the recent medical marijuana rally in Topeka, Kansas.
Joycelyn Elders, MD, former US Surgeon General, wrote the following in her Mar. 26, 2004 editorial published in the Providence Journal:
“Unlike many of the drugs we prescribe every day, marijuana has never been proven to cause a fatal overdose.”
Mar. 26, 2004 - Joycelyn Elders, MD